Living Donor Collective

Posted May 8, 2018
SRTR establishes living donor registry to study the long-term outcomes of living donation


The Scientific Registry of Transplant Recipients (SRTR) recently launched a pilot project called the Living Donor Collective (LDC) to study the long-term health and wellbeing of living kidney and liver donors. This living donor registry is starting to enroll patients beginning with 16 transplant programs (10 kidney and 6 liver) across the United States. Additional centers will be added when the pilot phase is completed by the end of 2020.

There is a growing need for solid organ transplants, and an increasing number of Americans are dying on waiting lists each year. While the number of deceased donor transplants has gone up, the number of living donor transplants has gone down since 2004. Currently, the long-term benefits and risks of living donation to the donor is unclear. The LDC seeks to break through this major barrier.

Transplant programs will register all individuals being evaluated at their center in the LDC. Organ donors can then be compared to individuals who were evaluated for donation, but did not donate, to understand the effects of donating and improve outcomes for all potential living donors.

The Chronic Disease Research Group (CDRG), a division of Minneapolis Medical Research Foundation (MMRF), operates the SRTR, which manages the LDC. MMRF administers SRTR under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services.


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